Combating Lyme & tick-borne disease (Lyme+) through community storytelling & education

Our story

Founded in 2024, LymeLnk began as a social venture out of The New School’s Impact Entrepreneurship Fellowship, where founder Eva Scarano is pursuing a Master's of Strategic Design & Management from Parsons School of Design. Eva has lived with chronic Lyme+ for the past eight years, an experience marked by the isolation of living with an invisible illness.

“But you look so good?”

At her worst, Eva couldn’t remember what she had done in class the day before or make it through a day without napping. She was in non-stop pain from early-onset arthritis, another Lyme+ triggered condition alongside Celiac disease, anxiety, insomnia, and depression. Struggling to explain not only her experience, but also the misunderstood disease with little resonance, was perhaps harder than the symptoms themselves.

“Chronic Lyme isn’t real.”

LymeLNK was created to ensure that others affected by this invisible, misunderstood illness are not alone. Mobilizing large-scale support, LymeLnk will amplify awareness and funding efforts beyond the immediate Lyme community, to create a world free of Lyme+.

Our mission

To combat the spread & severity of Lyme+ through community storytelling & widespread education

Community

Building relationships & gathering stories to empower community storytellers to revise the Lyme+ narrative & scale awareness for systemic change

Education

Partnering with experts across the ecosystem to co-create content, tailoring delivery to target archetypes to reach them where they are

Fundraising

Creating a new donation market though engaging events & revenue streams to bring in funds from outside the community

Connect with us

14.5% of the world has had Lyme disease

I'm Weston

I was bedridden, 40 lbs underweight, unable to eat due to anaphylaxis

I'm Lindsay

I had sudden onset schizophrenia & couldn’t remember my way home from work

I'm Olivia

Lyme+ physically manifested in my knee and I was unable to walk as an eight-year-old

here are their stories

What is Lyme+

Lyme disease, Borrelia burgdorferi, is one corkscrew-shaped bacteria of the many tick-borne diseases. Lyme+ refers to a wider group of infections, like Babesia, Bartonella, etc., which usually accompany Lyme

A tick-borne

A bacterial infection when an infected tick bites a human

Systemic illness

With neurologic, dermatologic, rheumatologic, and/or cardiac complications
20% 
of cases
are chronic, affecting approximately 100K people annually
Source: NIH
75% 
higher rate
of death by suicide in individuals diagnosed with Lyme+
Source: American Journal of Psychiatry
1.16B
people globally
500K  
new U.S. cases annually

There are more new Lyme+ cases annually than breast cancer, HIV, & Tuberculosis combined.

700x
less funding than other vector-borne illnesses

The epidemic of Lyme+ is severely under-resourced, partially due to lack of awareness & consensus.

The best time was yesterday, the second best time is now

As deforestation & climate temperature increase

the tick population increases & spreads

& tick-borne disease doubles yearly

Source: American Journal of Psychiatry

Our team

Eva Scarano

Founder & Executive Director

Dorothy Yen

Director of Finance & Operations

Camila Bravo

Director of Design & Marketing